Prasanna Kumar Shirol serves as a founder member of the Organization for Rare Diseases in India  and a Founder Former President of LSD Support Society (Lysosomal Storage Disorder Support Society),This is the first National Level Parents support group for children suffering from ULTRA RARE Diseases in India. The society initiated observing International Rare Disease day for the first time in India on a national scale under his leadership. He has worked extensively to create awareness on LSD and Rare disease in India. He has represented India in various conferences and meetings internationally .developed a strong network of international Parent and Rare disease groups. Prasanna Kumar academically an Post Graduate in Business Management has over 16 years of sales experience in telecom and consumer industry. Worked with companies like Sony, Reliance, Bharti etc. He has a experience in launching product and services. Personally, he is married to Sharada and has a 14 year daughter. Nidhi is India’s first Pompe Patient and also runs Pompe Foundation supporting Pompe Patients in India. Prasanna Kumar Shirol serves as a founder member of the Organization for Rare Diseases in India  and a Founder Former President of LSD Support Society (Lysosomal Storage Disorder Support Society),This is the first National Level Parents support group for children suffering from ULTRA RARE Diseases in India. The society initiated observing International Rare Disease day for the first time in India on a national scale under his leadership. He has worked extensively to create awareness on LSD and Rare disease in India. He has represented India in various conferences and meetings internationally .developed a strong network of international Parent and Rare disease groups. Prasanna Kumar academically an Post Graduate in Business Management has over 16 years of sales experience in telecom and consumer industry. Worked with companies like Sony, Reliance, Bharti etc. He has a experience in launching product and services. Personally, he is married to Sharada and has a 14 year daughter. Nidhi is India’s first Pompe Patient and also runs Pompe Foundation supporting Pompe Patients in India.

Management